3 ALD Stats and Facts

ALD is very rare, which explains why it's one of the lesser known genetic disorders in the world. How rare is ALD though? How many people die from ALD each year? What are the odds of.....? I decided to provide some statistics.

• 1 per 20,000 people suffer from X-linked adrenoleukodystrophy (right diagnosis)
• The incidence of X-ALD has been estimated to be 1:17.000 newborns. (x-ald database)
• Stem cell transplants on children with ALD show mortality rates as high as 40%

A you can see, ALD is rare but dangerous. It can lead to many problems and becomes very severe over time.